I’m so sick of being sick. I have these periods, sometimes as long as a few months, where I start to feel like I can see myself getting better. But then one minor issue and I’m back at square one again and I find myself feeling like I’ll never climb out from under all this illness.
The nutritionist, E, and I talked about the food allergy panel and we’re trying a few changes, but nothing dramatic. The big change is that I’ve been diagnosed with Obstructive Sleep Apnea (OSA) and prescribed a CPAP Machine.
They tell you that it may take some getting used to. What they don’t say is that you will feel like you’re suffocating, even though you aren’t and your body doesn’t want that thing blowing in your face all night.
After a week, I think I’m getting better sleep, but it’s been quite a struggle. I wish the doctors had prepared me more for how difficult it could be and that I may have some sleepless nights for a couple weeks. Why? Because I’ve got some other health issues that are greatly exacerbated by not getting quality sleep.
Add on top of all this, some family drama and stress with my father’s health and my parents moving across the country in short order and their need to have me come visit them 1000 miles away to help. Well, that was enough to tip me over and send me back into the adrenal fatigue again.
I’m jittery and have trouble regulating my body temperature. I can’t sleep when I lay in the bed, but I fall asleep quickly when I sit down on the couch with the laptop. I can’t think and have absolutely no appetite, even though I recognize that I’m hungry, no food looks or tastes good to me.
My husband and sole support system is leaving town to visit his family for a long weekend and I’ve got my trip to California coming up quickly and I can’t seem to get going on any of the million or so things I need to do between now and then.
My health team has been great at giving me guidance on the best way to take care of myself, but the hard work is all mine. And frankly, hard work is the last thing I want right now. All I want to do is sleep.
The last two nights I’ve managed to get good quality sleep, with about 5-6 hours on the CPAP. I think that’s helping, but I’ve got a deep hole to climb out of here. All I can do is take it one day at a time and do the best I can to care for myself.
And that’s the frustrating part. I hate feeling like the “broken girl” or the “sick one”. I want to be able to exist and live my life like a normal person, but that’s not happening right now. I know I need to be intentional and patient with myself, but I still hear that inner mean-girl screaming, “WHAT IS WRONG WITH YOU!?! GET IT TOGETHER!!”
All my team members are trying to remind me that I’ve already come a long way, but when I feel sick, I just can’t see it. I feel like I’m back at square one and I have to start all over. I’m just so sick of being sick.